02 September 2023

A Very Necessary Screening Part Two or aka EFF THIS PREP

 Okay, so now I've completed the screening.  It's fine, everything is mostly fine.  It just turned out more than I had planned or expected.  To tag onto Swistle again, I agree that it's important to share these experiences so no one is left surprised or scared or upset.

The second alarm went off at 4:00 pm to take the first doses of the pills.  I was working and was wearing my headphones.  I left them on, marched out to the kitchen, and dumped out the pills.  I set the stopwatch on my phone and started the process; pill/water/pill/water/pill/water/PAUSE/pill/water/pill/water/pill/water/PAUSE/pill/water/pill/water/pill/water/PAUSE/pill/water/PAUSE/pill/water/did a frustration dance/pill/water

The meds provide a 16 oz plastic bucket for the water portion.
I opted for a 20 oz. water bottle, knowing I didn't have to drink all of it
and bonus of not being made to feel like cattle lapping from a bucket.

I didn't look at the pills while taking them, I didn't want to be daunted because TWELVE. Instead, I just focused on the television or the window or Lucy and got them down.  I can't guarantee I am going to be this successful at 2:45 tomorrow morning though.  It is A LOT.

And now we wait for the...er...ummm...fireworks.  I still have four ounces of water to drink but I also took two bites of watery jello because I suspect that my stomach is also not going to be my friend as  I rarely take medicine. Let alone twelve pills at once.....

Annnndddd....as predicted, I got nearly done with the water portion and hurled.  I phoned the clinic and they said to a) take the next set slower and b) take the second set EARLIER.  FML.  However, I was concerned that I would have to start all over and so much NO.

Then shortly after that adventure, the intended effect began and I was surprised at how long it lasted. For not eating since 8:45 am this morning (it's now 6:00 pm) and eating very little over the past three days, it went on for so long that I was anticipating seeing aliens and lost socks.  But I knew this was going to be the case so no panic, just kind of sad resignment.

Now it's subsided and I have to "eat" which is chicken broth and my soupy jello.  Chicken broth is not the worst thing ever. Nor is it something I will now include in my diet.  Nor is lemon jello, lime isn't terrible but will remain on stand-by for medical procedures.  And of course, the never-ending water bottle.

This is where I say that for me the level of discomfort went from uncomfortable to unbearable and back again, multiple times.  I told Kevin that I'm never doing this again.  He tried to placate me and I said I MEAN IT.  I wasn't just pouting.  Justification for said pouting in a few paragraphs.

It turned out that I was awake most of the night. Kevin went to bed with Lucy and I watched television and drank water.  I eventually fell asleep, just to be awakened by the second Take Your Pills alarm.  I took my time taking them as advised and still it was a miserable experience.  I could barely take any water afterward so I couldn't remotely achieve the 32 oz. over one hour.  Luckily, my symptoms were showing that I didn't need to worry, I'm guessing that was because I had worked on so much water/clear food intake earlier.

This is where it went sideways.  I am allergic to Sulfa meds, they make me violently ill.  I honestly thought that I was having an allergic reaction.  My stomach hurt, all the rest of the digestive tract hurt, my kidneys hurt.  I was laying on the bathroom floor thinking I was going to have to wake up Kevin because something was clearly wrong. 

Finally I made it back out to the couch, fell asleep and slept fitfully for two hours, maybe.  Kevin woke me up just prior to the final alarm.  I was still feeling sick - nausea and pain, still "symptomatic" and now emotional like an overly tired child.  I slept in the truck on the way down then had to check my attitude at the clinic.  Because they don't deserve any wrath for something that isn't under their control.

Kevin's treading lightly at this point, not making eye contact.  Because he's never met a stranger ever and he has the face that read "Talk to me" he struck up a conversation with an older couple behind me which veered into wills, dnr's and prepaid burial plans.  I'm thinking "Can we just...like...not right now?" 

The check-in process was quick and we waited one minute before they took me into pre-op.  The one happy thing that happened is one of my favorite local artists had art on the walls.  

Ben Mann - photo nipped from his website

The nurse was a little younger than me and was my favorite kind of medical professional: kind but direct.  She listed out what was going to happen step-by-step.  She mentioned sedation levels and I told her "I don't want to remember any.of.this.ever"  She nodded assuringly and said "We can do that".  

So, now I'm waiting and I hear the patient in the next cubicle.  She sounded like an older lady with a complicated health history.  She seemed very familiar with the process. A different nurse was doing the check-in process and she asked how the prep went for her.  She had the EXACT same issues that I had, including the considering going to the ER.  

At this point I felt relieved and vindicated.  I'm usually the very definition of stoic and this was so not how I deal with these types of things.  The nurse returned to me and started her process for the procedure: i.v. pulse ox, blood pressure, etc.. She asked how I was feeling and I explained that I was miserable, still feeling sick and in pain. She was sympathetic but my brain says she doesn't believe me (even if she did) so I mentioned that the lady next door reported the same issues. (so much for HIPAA laws, btw)  

The nurse, to her credit, lowered her voice and shared that they had a many complaints about that style of prep.  Again, I felt vindicated and validation and also: frustrated.  I asked her to note that it not be prescribed to me again and she agreed.

She left, I napped then they rolled me back to the operating room.  I rolled over as instructed, which is actually how I sleep anyway and I went to sleep.  I remember nothing of the procedure.  I woke up to the nurse asking me if I wanted Kevin to come and next thing I knew, he was sitting next to me and it was time to leave.

It turns out that they removed three tiny polyps and sent them for testing.  Odds are it's nothing to worry about BUT - no pun intended, but funny - it now means that I have to rescreen in as little as three years, possible five.  Right now, that is a no.  More on that in a minute.

I opted for walking out instead of using a wheelchair and of course, I stumbled.  The nurse looked skeptical and I laughed "That would have happened without sedation" and Kevin agreed.  

We stopped at the starbucks to get a white chocolate iced mocha and chocolate croissant then I did the little seat happy dance to have food.  Once we got home Kevin went out to the shop because I needed space after all of that.  My stomach/internal organs were still aching but I felt like doing chores or something instead of laying back down for a while. 

Well, that found me under my desk rerouting the cords to my computer, printer, router, lamps, etc.  It also included Kevin cutting a whole in the kickplate of my desk so I could do this.  Yesterday I think I could have gotten him to do anything for me.  lolsigh.

Once that was done, I did nap for a bit as my abdomen was still tight and aching.  Kevin woke me up and asked what I wanted to do for dinner.  Also, that he had scheduled a haircut for 4:00.  My choice was snoozle on the couch and he would bring me whatever I wanted for dinner or I could go and choose which restaurant.  I felt good enough to go so we went.  We sat outside at the marina at one of my favorite restaurants, I had prawns and steamed vegetables that were so GOOD.  

Then by the time we returned home, I was feeling sick again.  I "recycled" my dinner and I have to mention that it hurt. Not the expected kind of hurt because of all the "activity" if you will - and yes, that too, but hurt then ache like before and probably where I now have little cuts or stitches.  I took some ibuprofen (as directed) and laid down on the couch.  

I remarkably slept through the night and slept in.  My stomach doesn't hurt, nor my kidneys but my abdomen remains tight and sore.  The clinic phoned to check in and I missed the call.  I phoned them back and they're closed because Saturday.  It's not enough to call the on-call but I will phone them on Tuesday.

Kevin asked how I was feeling and I said marginally better, still not "normal"  I told him that I don't see myself doing this again, it was so miserable.  He understands but demurred a little.  I explained the laying on the floor thinking about going to the E.R. and he agreed that I need to talk with the doctor.

So, now, I went and read my medical records because I'm a huge nerd.  It turns out that they used a pediatric scope.  I continually forget that I am child-sized.  Child-size glasses, child sized anything medical.  Did you just think what I thought?

I wonder if I need the child-size dosage of the prep stuff.  The wonder has merit as I was symptomatically good after my first prep.  I really didn't need a second one.  All the second one did was make it painful and miserable.

So I'll be asking THAT on Monday as well.  

With that, for me though, it's a hard pass until there are better prep procedures for this. I will do the other style of test, which I've done before, instead. I thought that maybe today my attitude about this would be different and instead I feel more steadfast.  That's how sick and in pain I felt.

While there is another way to check that is less invasive and traumatic to the body and psyche, I will opt for that.  Yes, it's not as thorough or proactive AND it didn't literally ruin my life for days.   If I have to do it, I will opt for the gallon of yukky stuff but I still will have grave concerns about the whole prep process.  

Despite all that being said, schedule your colonoscopy, it is important. It might just be me that had this experience. I'm allergic to everything, I don't take medicine usually, it could just be me. It could just be that prescription of Prep.  

Go prepared with questions and concerns and know that it is your choice.  Use this and Swistles post as a guide to help assuage your concerns and know what questions to ask.

  


2 comments:

Swistle said...

Just the worst, just the absolute WORST.

And I am so glad you had it done. The nurse was asking me questions, and I said my mom had had polyps removed but I didn't know what that signified and she said "Polyps are why we DO colonoscopies: polyps, if not removed, tend to turn cancerous."

Anonymous said...

I had mine in 2020 and I have also vowed NEVER AGAIN. I am "all clear" so I supposedly have 10 years til the next one but I'm going to go with NEVER. The prep was so so so bad. I think dosing needs to be by weight - and what are the chances that they've checked dosing for women vs men? Pretty small, I'm guessing!