My original email to my BFF was titled "It happened again. This is ridiculously long." I will try to not barf words and feelings into this bloggity.
But seriously: OMG.
Remember when I said that my father-in-law had settled into the facility and we thought we had made some progress? Nah, never mind. We couldn't be further from being right. Right is in the ditch and on fire.
So, he had a great few weeks and the meds adjustment that I may or may not have told you about was finally making a difference. He had dinner and breakfast with the family on two separate occasions, and had a long phone conversation with an old friend/boss.
Then. During his daily call with his boys, he mentioned that he wanted to have a family meeting. It wasn't a big deal, nothing to worry about, and no, it wasn't about money, he said. Color both boys skeptical.
He said it wasn't a hurry, we could wait until the weekend when we regularly visit. We called his bluff and said We Are Doing It Now. We're not playing any sort of game here.
Now I'm scanning my brain to try to guess what he could possibly want to meet about. I thought it was going to be a request to go out of the facility more, be more independent or spend time with family. Kevin thought it was going to be something about his doctor's appointments - because he has one in September so now is the time to plan for that. My b-i-l's nightmare/guess was he wanted to come back home. My sister-in-law had no guesses.
Pause while I copy/paste from the email because OMG...
S-i-l and I arrived first to the facility and we were waiting in the lobby and the conference room for residents is adjacent to the lobby. We were just kind of lingering for 1-2 minutes. Out of nowhere, the f-i-l says "Hello girls" or something like that and startled the hell out of me. So much so that another person waiting in the lobby laughed out loud. I made the joke of "This is NOT the place you want to hear voices from the great beyond!"
Well, f-i-l was sitting in a chair that was propping the conference room door open, with the lights off and didn't say anything immediately when we arrived. This should have been a warning but we just thought whatever about it. His usual greeting is "Hello, kid!" or "Hello there, persons name" so we're already off to a weird start.
So we go into the room and s-i-l and I sit next to each other while the f-i-l drags a chair to the table and sits at the head of the table. He's very quiet and serious, which is very unlike him. He awkwardly makes small talk like "are you busy at work?" until Kevin arrives after a 11-hour work day in 90 degree heat. He is in NO MOOD and was a little curt when f-i-l asked him a similar question to ours. Then the b-i-l arrived and sat next to Kevin.
We all sat there and let him start this meeting. His demeanor was almost formal and said something like "thank you for coming and I wanted to have everyone together..."
He said that he's been upset and "Crying in my room all week over this" and he wants to talk about it. He was literally giddy the day before because he talked to his friend, so our spidey senses went even more up. (Also, the facility would have phoned us)
He continues: "Back in January when we had that disagreement, who started it?" To which, we inappropriately collectively responded with "YOU!!!" I think it was just a reaction borne of shock.
IMMEDIATELY he was angry. IMMEDIATELY "I did not! I was mad because SHE - and he finger-points at me - Would NOT give me my bank statement or even tell me how much I had in the bank!"
Kevin, incredulously - calmly says "Dad, we said we're not talking about money. If that's what we're going to talk about then..." and his dad interrupts him with the whole spiel that we experienced in January, accusing/implying that we hid money from him and/or spent it on ourselves. Conversely, he is ALSO mad that we spent our own money on him.
Again, he raised his voice at me and pointed and I responded "Okay, I'm going home. I'm not doing this." and looked at Kevin. Kevin went all I'm The Captain Now and told his dad "You aren't going to speak to her like that, you'll speak only to me and be Very Careful How You Proceed." So I gave it a beat to see what would happen next.
Now, all the therapists, social workers, med staff state to not engage in these situations. TELL ME HOW WE'RE SUPPOSED TO DO THAT. But I sat quietly, with my keys and phone in my hand. Kevin reiterated that we weren't going to talk about this because this was settled and why is it coming up again; meaning what brought this on, not let's rehash this, etc. F-i-l continues on this rant again about how we spent his money and bought a blanket but I said that we bought it and the paperwork says he bought it and...we were all just nonplussed.
Voices got raised because this is a loud family who likes to argue. Again, we did everything wrong. We admit it but it's nearly impossible to no react when you are ambushed like that.
At one point, as I stood up, the f-i-l said something like "Why don't I know this? No one has told me ANYTHING" and I said exactly what I'm not supposed to say "Because you've forgotten. You've forgotten and that sucks and that's hard but you don't get to be mad at US." This momentarily silenced him but with a wave of his hand like whatever, which then set the boys back off again.
My s-i-l finally loudly said "THEY SAID TO WALK AWAY IN THIS SITUATION. WALK AWAY." She never, ever, ever raises her voice. EVER. So we were momentarily silenced then I said "You're right, that's what we have to do."
Kevin sat back incredulously and looked at me "They said this would happen again and here we are, it's happening." Then the verbal ruckus started again until Kevin said "This is over, we're done" to which the f-i-l slapped his hands on the table and said "Then this meeting is OVER" and went to stand, as if we're being dismissed. The brother wades into the fray with "Well, then you're just going to stay mad at us? You don't trust us?" and s-i-l and I walked out. I went to my car and stayed on the side where I wasn't visible to the windows. The f-i-l doesn't know my car but I could envision him trying to storm out of the facility.
A few minutes later, the boys finally came out and said that he was returning to his room mad as hell at all of us. To which, I laughed - because: traumatic childhood- all I could imagine was "storming" away at a snails pace with a walker and it was funny in my head. We all just kind of stood there in stunned silence then the brother just said "I guess we just go home now..." and we went to our own cars. We went home and was just defeated.
The next day I phoned the facility and left a voicemail for the assistant social worker, explained that we had a verbal altercation and wanted to ask a few questions.
Then I texted the advocate and asked her to phone me for a quick conversation.
Then I called the dementia specialist to ask what we should do now. I explained that the "consequence" last time was nearly a month of no contact because it took that long for him to get out of that particular headspace. She is Team No Consequence and I'm gritting my teeth about that. She thinks we should keep our regular visitation schedule and just excuse ourselves when he starts in. I explained that we're exhausted and hurt and please don't say "It's the disease, it's not your dad" because that is unhelpful. I told her that we were taking a break to keep ourselves safe but we would work on that boundary.
My frustration with this particularly is she is advising us but hasn't met Kevin's dad. She's just providing help/therapy for us. So, by her own admittance to be fair, her answers are usually one-size-fits-all. This sounds like a complaint but it's more an acknowledgement.
However, the therapist was curious about the personality shift, as per the kind of formal and "in charge" at the beginning of the meeting, which isn't him AT ALL and the calling of a meeting in and of itself. He's never been a supervisor or in any kind of position like that. Not even within the family structure or hierarchy was he the boss. He was gone all the time, on the road. So we wondered if he saw something on television. I'm now wondering if he was acting like his old friend he had talked to, who was the Owner of the company he worked for. But we'll never know.
She was very puzzled at the manipulation; the "nothings wrong, no this isn't about money" when it was and also the drastic mood change in less than 24 hours. She did say that we have no idea what time means to him now. His one minute can mean a whole day at this point, it's difficult to judge. But this applies to the "all of a sudden" change, perhaps. Also that, strangely, he shouldn't be cognitively able for such conivery.
Then right after that, the advocate phoned me back and before I could explain what happened, she said that he had called her TWICE. She didn't say it like this but basically he called to tattle, twice. Strangely, he's referring to himself as Mr. Johnson with her. (WUT) I explained how the meeting came to be and went, which was of course different than he reported.
She did not focus on his issues other than to say that he appears to be stuck back in November. again. He wants his debit card again.
She's already had her appointment with him this month but said she would check in to see what's happening with the facility.
Meanwhile, Kevin spoke with the assistant social worker and she said she would check on him. She did then reported that he was "blubbering like a girl" in his room and hadn't left his room all day. She said that she spoke with him about what happened and could get him to agree that we weren't robbing him blind and that we were good kids but could NOT get him to stop being angry. She said he reacted to her just like he did to us. Amenable and then FURIOUS.
We asked if they could medicate him through this and she said she would check with the nurses to see if that was a thing. She said she would call Kevin by the end of the day and then...did not.
Cue us calling the facility over and over but didn't get any satisfying answers. This is not the first time that this has happened. I'm going to call and schedule a care meeting so the family can get an update on his overall status.
Everything I've researched states that the facility should be having bloodwork and urinalysis completed. They may have but I suspect not. Also, I learned to call this particular thing a delusion, not a memory issue. It's both but he's clearly not based in reality right now.
There is nothing concrete to be done otherwise. We're switching focus to making sure he's taken care of and the facility is helping him through this instead of US fixing the issue; because that's unfixable. He's not in his right mind and we can't keep signing up for what is essentially abusive.
Then next day, I called the facility and asked for help scheduling a care conference, which sounds more formal than it actually is. It's meeting with his nurse, social worker, etc. for an overall update. I left a voicemail with the social worker, again.
Then two hours later, I phoned again and asked for help because no one is returning our calls. I was put directly through to the assistant social worker. The one who originally did not return our calls. She did answer.
I explained what had happened and then she explained what happened. They "staffed" on him this morning so everyone is aware of what is happening. And it is A LOT:
He is angry at us and refuses to see or talk to us.
He has demanded that the facility NOT share information with us specifically.
He had demanded that NO ONE have ANY conversation regarding him without him being present
He wants to know where his $100 a month is. (Medicaid allowance)
So, he's IN IT and it seems that they're not confident if he's coming out of it. It could be that he's tipped all the way into Stage 5ish dementia at this point. That makes this easier and harder.
Then I'll leave out the details that the facility had a report over the weekend that he had left the building unattended. They notified the wrong family, it wasn't our dad. SIGH.
I asked for guidance as to next steps.
I explained that we cannot and will not go talk to him at this point in time. She agreed but they also want to facilitate visitation so that's a sticky area for them.
I asked if they had run blood tests and urinalysis but she wasn't sure or was vague.
I asked what power, if any, the durable power of attorney holds when he makes proclamations like he has. She said that it could become a thing and to which I responded "Then he's your problem to solve. I'm not being flip or sarcastic, he ties our hands." She said she understands.
I asked her if he is at the point of needing a facility change and she said "Not yet" but I have a feeling that we may not have a choice if he did become a flight risk or worse, combative with the staff. She said that they have had difficulty talking him down more recently. (something they should have reported to us)
Then she said she would go meet with him then phone me back with the details. Hours went by with no call. I had to call again.
She reported that she had a "come to jesus talk" with him and asked him why he thinks his kids are hiding things, etc. He was not able to answer that question clearly and shrugged it off. She could get him to agree that his kids love him and want the best for him but when it's time to connect the two thoughts, he's unable. He's like a toddler who is so tired and angry and they just Can't Even.
She asked him if he wanted to know why SHE THINKS he's upset and he said yes. She told him straight up that she thinks he's mad and frustrated that he's losing his independence. He agreed. (don't get your hopes up) Because then he immediately complained that he told b-i-l that he wanted to barbecue and that he said no. She asked him why he would say no and he said "Because he says I will fall." YES, that is a thing.
So she offered that we could use the backyard of the facility to have a barbecue and he said he didn't know they could do that and maybe that would work. To which I replied "You gave him a solution, gdammit!" and laughed. She took it as WE would have to follow up with that and Yes, but I meant it as you gave HIM a solution so he'll have to find something else to be mad about. And he will.
To clarify, it was a vague conversation with no plan and it was extrapolated out to HE WON'T BARBECUE FOR ME; aligning with the thought that he's about kindergarten level cognitively.
I'm editing the conversation reminding him of the goal the facility set for him months ago to participate at the facility and he refuses. Because: reasons.
By taking his debit card and cash to him, it takes those two complaints off of the table. I told her that I'm not interested in seeing him right now and I think she was a little disappointed with that but understands. While she knows what happened, I don't think she understands how ugly it was in context to the last 35 years we've been with him. She's only experienced this version of him.
I also posited that there is perhaps a level of manipulation happening and that he will react differently to a male than to a female.
So, now the boys are still having big feelings and that's righteous. The next time(s) we have to have good boundaries. If the vibe is off or he starts in, then we're out and we'll visit less often. Both boys have mentioned an apology and I reminded him that we really didn't get one last time and it's too high of an expectation at this point. I tried to make the comparison of 9-year-old Nephew who has better judgement and emotional regulation than their dad does now.
The dementia therapist gave me the idea/tool/whatever to use my Early Childhood degree/experience and make comparisons as he's actually aging backward. He's lost emotional regulation so that takes him to the Kindergarten range. He's like the kid who is intelligent but socially & emotionally immature. I can kind of apply that in this situation but no one else has had that kind of experience or education.
Then I realized that he is getting SO MUCH negative attention in this situation and that pairs with the kindergarten level also. Now I need to figure out how to make this information make sense to Kevin. I managed to make a car analogy about his memory and car wiring so there's hope. lolsigh.
BUT WAIT, there's MORE.
The next day, as planned I was going to take the f-i-l's debit card and his monthly allowance to the facility. But first, I thought I would log into his bank account (that I am a co-owner of), print out a recent statement and include that with the cash and card.
And: error message. I'm not able to log in and I have to call a 1-800 number.
Immediately I'm mad. I knew/suspected - yet hoped not - but knew he had called the bank and created a mess.
I called the number and sat on hold for 20 minutes while I worked before I finally hung up because that's ridiculous. (Bank of America, btw)
I went directly to the branch, gave them my ID and debit card and explained what happened, even showing them the error message on my phone. Their demeanor changed so now I knew I was in it. There was a fraud hold on his account so only deposits were allowed, no other transactions.
They gave me a telephone number to call that was different than what was on the website. I went out to the car and phoned it. There is a code/extension that is required and if you don't have it, the call disconnects. I walked back into the bank and explained what happened to a different teller. She gave me a different number and said it would connect directly to a human.
Back out to the car I go and I dial the number. I do get a human and she's lovely. It took 20 minutes total to get the extension and then finally I get a VOICEMAIL. I left a message and went about my day. I couldn't get cash, his card was dead and there was no need to go to the facility. I phoned Kevin to explain who then phoned his brother, etc.
I did my errands and walkies then returned home. Two hours later, I phoned again and left another message. One hour goes by and I phone again and leave another message. Now I'm mad about the situation and the BofA
An hour and a half later, I realized they might be based in the Eastern Time Zone so I phoned AGAIN. This time I got the actual human and again, totally lovely person.
F-i-l had called the bank and reported fraud. Over the DoorDash transactions. That say DoorDash: Dennys or DoorDash: Sahara Pizza and that happen on FRIDAYS. He also told them that he had "Been kicked out" and they said they didn't know what he meant but documented it.
She asked if he was in Assisted Living and I explained he is in a Skilled Nursing Facility, has dementia and is 86 years old. She says "We didn't have that noted. I have put a note in the file that he has dementia and if he calls again, it will not go any further." Cue me frustrated with myself because the dementia therapist SAID TO DO THAT and I hadn't gotten to it yet. Sigh.
They said give it an hour and everything will be reactivated. LUCKILY, they didn't need to issue a new card. But now I'm over it, I'm not leaving the house. I was in shock, then I was sad, and now I'm just hair on fire mad. It's good that I stay home.
I phoned the assistant social worker to explain what happened. I mentioned that the family vote is that he doesn't get to have his bank statements again. She was Not down with that idea, mostly because that's where he is deriving his power and control and that would really upset him. My counter to that was that I spent nearly the Entire Day being upset and fixing what he did.
Oh, and also, that was kind of an official accusation that could have gotten ME into trouble.
AND I took time off of work to deal with this.
I told her that I would bring the card and his monthly allowance down the next day.
She stated that they don't want the full $103 but the family is not giving them the choice. If we have to give his bank statements to him then they get to deal with $103 cash on hand.
THEN I texted the advocate and asked for one minute of her time. She phoned almost immediately and asked for an update so I explained all of the above and she was horrified. I shared that we are taking his debit card to him and some cash. Also that there was disagreement over the amount of money we should give him. She said that it has to be the full allowance or he's going to hyperfixate over where the rest of his money is. She said to plan to bring the $103 dollars every month and that SHE will help him budget/manage his money. BET.
I explained that we were using DoorDash and what to do about that? She - in the nicest, passive, Southern way possible - says that's for the facility to figure out. So I cancelled his DoorDash account because OMG. We weren't sure about that at first but it's connected to my phone and email so it was cancelled just based on the risk factor if nothing else.
I asked her if he had told her that she couldn't talk to us and she said no. I said "not yet" and she didn't disagree. However, she said because of the Durable Power of Attorney, he doesn't have that right. I shared that the facility was all "Well...." about it and she added that to her case notes. She can touch base with the facility staff to clarify that issue.
Somewhere along the way, Kevin said he told his brother that the one person that got the brunt of this - Me - is the one who is working the hardest to fix this. I explained that it has become my job to do this and it's me who is talking to the social worker, advocate, and dementia therapist so my information and attitude is different. Also, my education and experience in education and social services have been PUT TO USE.
Then I realized that I'm back in my childhood dealing with an angry father but this time I have the TOOLS TO DEAL.
I told Kevin that the mean girl part of me wants to just go slap the card and cash onto his table and state "We are NEVER talking about this again" but it would be futile and I would be "yelling" at a crazy person. Also, he didn't tell US that he wanted his card and cash, he told the social worker and the advocate; so I'm not supposed to know any of that anyway.
One more detail that happened: F-i-l talks to his brother about once a week. One of the boys phoned their uncle to let him know that their dad is in the dark place right now. Uncle said that he would phone him then let the boys know what he said. Later, he reported that when he asked "How's the kids?" Dad told him that he had screwed up and made us mad. But didn't elaborate or indicate any sort of plan to fix it, if you will.
Now it's been 2 days and no changes. Part of me thinks the negative attention he's getting for pissing off his kids, he thinks, is working for him.
By giving him the card and cash, it gave him a reason to call and he didn't. We did practice what to say if he phones to order dinner on Friday: "Dad, you have your card and all of your money. I cannot order dinner for you." And that's all to be said. I can't even say that DoorDash has been cancelled because you reported it. Sigh.
We cannot remember how this was resolved last time. I think someone just risked a visit and he was "fine." But now I'm wondering if he was fine or if we just hadn't triggered him. I don't know, this is all speculation.
Then I thought of the movie quote from In & Out and laughed "Thank god my parents are dead because this would have killed them." This would have shattered my mother-in-law. I'm thankful she is missing this chapter.
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